Hey Bloggets. I’m pleased to say that our canary, Irish you
know? Is at least alive. He is very quiet but at least he is flying around. The
cage he is in is huge. Three times bigger than the smallest ones you can get. I
don’t like caged animals, birds have wings to fly, but my Son really wanted a
bird we said no, then Mr. Clock bought him one for his birthday many years ago.
The bird he bought, Jeffers. Yep, odd name I know for a canary, as is Dean the
current one we have now. Jeffers was not an Irish canary, I can’t remember what
he was but as Olga said in her Russian accent, when she visited.
“Goo’oo’oo’oodness, Eet eez a cheeken.”
And he was the size
of a chicken. Only thing is, he wasn’t a he, so never sang. Sadly he died. He/she
was only a year and a half some people said when the females have eggs they can
get stuck. It was said to me that I should try to unstick.
Em.
No. Not happening.
So teen was still a young teen we bought him another canary.
This time an Irish one as we were told if they were boys they would sing so sweetly.
We got him when he was a baby so how to know he was a boy? The breeder said he
was… But you don’t really know with birds until they are about one year old. We
waited until he was a year and he did sing so sweetly. He is about five now.
Gosh, where has the time gone?
Anyway Teen said he is looking great. The canary that is not
teen, though I’m sure if you asked my Son is he looking great, he would answer
yes….
Talking of Teen he has just come back from the gym. Now washing
his car then after a shower he will go to visit a friend they are having lunch.
The weather today is really sunny it’s a beautiful day.
Fresh and spring like!
I have a duster with my name on it. Also got to clean the
windows upstairs. Don’t panic, from the inside not the out. Our outside only
gets done when our window cleaners either run out of beer money or come out of
jail. I have not found out what yet. They come about every six months. In the
summer I do the outside ones myself but my hands will freeze in winter and
stick to the glass. Smile.
Oh heck. Teen cleaning car with his awful music blasting.
Our avenue from the front is so quiet, the back is like a motorway but the
front is peaceful. Until a Teen cleans his car.
Waggatail is playing with a huu’uuge toy Hub got from work
from a colleague. It’s an octopus. It is enormous. Half the size of a
Waggatail. She loves it. As does the Little Fella. But we can only let them
have it for a while or they start to think it is roadkill. Talking of that,
poor animals getting killed. My brother in law who I love to bits annoyed me
yesterday. He does it deliberately. He is hunting innocent animals right now in
Scotland. He boasted rather repulsively he has killed 125 rabbits and 32 geese.
And what does he want from me for that? I sent him a text and wanted so badly to
say so much more but Hub told me off and said just drop it. It sickens me. At least
when he goes to Australia he will be leaving our beautiful creatures alone.
Sorry for Au though.
He is such a good brother in law, or normally I would not be
able to have anything to do with him I just feel sad that he can do this with
pride. And he is so mischievous telling me of his murders knowing how I feel.
Why would you do this? If my heaven is what I hope it will be, I feel sad my
brother in law won’t be joining me when it’s his turn. Each time I feel so sad
because he is abroad so far away, and I will miss him, I will just remember his
texts of tails of torture.
I want to end this blog on a positive note. So here we go.
For those with RP, the eye condition I have latest news is as follows. When it
comes to research, moving a treatment from the lab to a clinical trial is
challenging; requiring significant financial resources and drug development
knowledge. But advancing a theory to
this critical stage also brings it much closer to the people with retinal
diseases that desperately need it.
These trials only happen because of the time, money and expertise
by funding.
Funding has been raised to launch a clinical trial of its ontogenetic
gene therapy. By harnessing surviving
cells in the retainer, the treatment holds promise for restoring some vision
for some people who are completely blind, regardless to the gene mutation causing
their blindness.
There is a breed of dog that has the canine version of our
eye disease and a stage two therapy has restored vision in the dogs that were
blind with this x linked related RP. The buzz on the net is the light sensing
retinal cells, from cells that do not normally react to light. This research is
in its earliest stage and has been conducted in the lab so far. But it sounds
promising. I think if all goes right, in five years’ time, we will be seeing at
least light. I doubt in my lifetime in my forties, I will ever see as a sighted
person, everything is so slow, it’s down to money first secondly an
understanding Government and thirdly the knowledge of people power. I just wish
that all scientists around the world would work together. But it’s a race. And
perhaps that is what it will take to inspire scientists? In that case let them
spend time with real people who suffer with RP? Those who can’t get out of bed
in the mornings with deep depression. Those who live in fear of losing their
eyesight. Those who are new parents who have just been told that their child has
this what can be crippling disease.
Those who don’t have holidays, or have great family days out and for
those who simply want to end their lives. Sadly the scientists see those who
are out there, those who are what I call the super blind. Those who have moved
on and learned to adjust and thank God for people like them. As they are the
guys who are knocking on doors for those who just can’t. But happy words happy
faces aren’t going to bite at the hearts of scientists. We are just a test
tube. We need to be real. Then who knows things may progress with speed.
New research from the United Kingdom has demonstrated that
stem cells found in the cornea could provide a source of photoreceptor
cells for transplant in those with degenerative retinal conditions such as RP but
again early stages and won’t start human trials until 2020. Lets hope something
much bigger will come before then. But things are moving in the right direction,
just very slowly.
“Don’t be discouraged its oftern the last key
in the bunch that opens the door.”
Fiona Cummings
No comments:
Post a Comment