I can’t believe it, I published this blog and when I looked,
it was the blog number of the year I was born. Gosh, is this a message? There
are some who believe so. Others would say it’s quinky dinky.
I would love to go and visit a fortune teller. One that was renowned
to be good. I have seen so many in my past, two of them were amazing. Loads
were rubbish. I saw one in America even with my dear friend Yam. She did say a
few things that came true.
My Husband dislikes the idea of me visiting a spooky cookie.
I guess it is messing with what we don’t quite understand and what if they were
to tell me something I didn’t want to hear? But then they could tell me
something I so badly wanted to know and I could chill about what I am really
worried about. You know when they are fake and when they are the real deal.
My peace is about to be interrupted as teen is on his way
home from first day at college after half term.
So loud music I guess. At least he won’t have pans all over
my kitchen as he phoned to tell me he has had lunch out.
It’s a very sunny day and mild. We are going through odd
weather.
My dog is playing with her toy. A ball that sings. Hehehe.
And goes
“Neher, neh, neh. Neh neh. Neh’h’h
Oh yes, only the best toys for our beasty girls. Ahahah.
Already counting the hours until Hub is home. About another
thirty four.
You know he is at a meeting that really is in my opinion pointless.
Patronising too as they will be drawing pictures and playing stupid games that obviously
can’t involve a blind person. Suppose to be team building. Really, let him and
others get on with their job of helping people.
Right, off to write some poetry now. I feel bluebells coming
on. I just love to write. Really I do. And for some odd reason, you read what I
write. This bit I don’t get But I’m so grateful you enjoy the rubbish I write.
As one day you I pray will all read my autobiography and that will be a show
shocker.
Below is the blog number of the year I was born. So this is
a message to my RP friends, now what message? I’m not sure. But someone out
there may be able to tell? It’s about getting treatment for our condition. If
you have read it already, thank you. If you are reading it for the first time, thank
you. If you are one of those scientists or researchers please keep going and if
you are donating to fighting RP or fighting
blindness, thank you all to from the bottom of our hearts.
Before I go, here’s some final words before my repeated
blog.
The right people will come into your life but you have to
let the wrong people walk away too.
Start believing today that your best days are in front of
you. How wonderful your future will be.
When you face adversity, you need to remind yourself whatever
is trying to defeat could very well be what God will use to promote you. You
can change your life by changing your words. Death and life are in your tongue.
India, Spain, America, Germany, United Kingdom, Belgium, Portugal,
Kenya, Netherlands and Canada are just some of my Bloggets who are reading
today. How are you all? Well I left you early last night; early for us is ten
in the evening. To go to bed as my Husband had to be up at 5a.m to catch a
6.a.m train, so to give him a chance to sleep. Well, he can sleep on a clothes
line. Really, he makes me laugh. He will get into bed and say. “Oh, I doubt I
will be able to sleep tonight.”
Yeah, right, about three minutes later, the walls are
rattling.
Me? Em, nope. I’m lying there forcing myself to close my
eyes. Thoughts buzzing through my head, drilling into my skull like a workmen’s
tool. I then put on my IPod, with earphones of course. After an hour I feel
tired. I turn it off and about an hour later, I’m putting it back on after
having no sleep at all. Well, fast forward some hours. Last night or this
morning, it was half three before I remember feeling as though I was drifting
off. That was after getting up and eating two apples. Haha haha. Yep, your Fifi
Blogget is a strange one.
The alarm went off at five and poor Hub got up and ready,
thankfully last night he put his bag together. He’s amazing he remembers
everything. My ex had to be reminded about everything and I can tell I get on
Hubs nerves when I do a check list with him.
Well, as ever the
taxi was late. But he got there on time. He had to make a change too. I hate it when he
does that. Just more for me to worry about. But again thankfully he managed and
the last time I spoke to him by phone he was in a railway café with a coffee
and a breakfast snack. As it’s a long day for him and his meeting wasn’t until
ten so he would be an hour early, but the trains were fully booked as he found
out yesterday for a later time.
He has taken his faithful Long Chops with him. She will be
happy she is working. He has left her at home the past two days as she wasn’t
too well at the weekend….
Oh but we had shirt gate before he left. I got him a shirt
last night from the robe and he put it on today and he didn’t recognise it…
Heck, I hope it’s not one of the girls? Hehehe Pyjama top? Oh my word. We just
wouldn’t know, I must say when he wore it, I also didn’t recognise it. Our
girls are tiny slim so I doubt it is theirs, but you never know? That is the
the number one thing that really gets to me. Clothes. Sorting them out. I
really can’t deal with it. I’m getting worse too. I think it’s because we have
too many. It’s not too bad for me as I remember my clothes but for Hub? As especially
because my friend Vivi buys him shirts. Mind you, they are almost always blue.
I was thinking last night whilst the workmen were doing
their job inside my brain. Imagining if I was to get sight because of a
fantastic breakthrough in some years to come? The moment when bandages would be removed from
my eyes. Gosh, would I be too afraid to look? What if the operation hadn’t
worked? How would my emotions cope? I guess I would be alright. As I would be
no different to now. Yes of course disappointed, but grateful that the medics were
trying to do something. So I was stage one, Okay, bring on stage two…
So this time it worked. My eyes would open to a brand new
world. Wow, I would see the face of the man who performed this life changing
achievement. I would search the room for my Husband seeing on the way to him
items in the room I have never been able to see, even when I was partially
sighted. I probably wouldn’t recognise what the tools were. Then my Husband. Oh
wow, what would he look like? As I’ve said before, last time I saw him he was
twelve. We both were. Oh the thought of seeing him now? As for my Son? He was
one when I saw him last. In five days, he will be eighteen. A man. How would my
heart deal with such shocks? Gosh, the thought of all of that and that is
before I got to a mirror? Looking at myself may finish me off. Hehehe. When I
could see, I could never see my whole face in the mirror. Only parts of it.
Like for example, I wanted to see my eyes, I would look to where I thought they
were and be able to see one eye at a time and nothing around it. I would move
around my face and in my mind, put it all together like a jigsaw puzzle!
So if I were to be given sight? I would be able to see my
full face and even what is around it. Like what is in the room. Or a long mirror
and I have to add wide, hehehe, my full body too? Really? How would this be?
Gosh, really, it’s so far away this thought, it’s scary when you begin to analyse
it all. But then after the shock, comes the living.
No more hiding away, no more fear of the outside world. No more
summers stuck indoors. Picnics, parks, scenery streams, rock formations, birds
bees and butterflies. Green grass. Colour green, yes, reminds me what is green?
I have a vivid imagination of that colour, but when I think of it now, it’s
almost grey. All my colours are turning grey. Red is one of the last colours I
remember, oh, and blue. If I really think hard, yellow and purple. But fading
they are so fading to the back of my mind.
It’s so weird to think of seeing again. As for a third of my
life has been with closed curtains. But now my mind sees what’s before me. It’s
so odd. I have pictures as though I can see, if I’m putting something in the
microwave, I can see a microwave. Now sometimes I forget and see for example a red
dish. I ask my Son to pass me the red dish as he is closer to it? He replies,
Mum its blue. Blue? Really? Then I remember I had a red one the same some years
ago. Before I lost my sight, but in my mind, the dish I would whisk things in,
was red. All the time it was blue, but my mind’s eye saw a red dish. So a white
microwave? Nope, it’s silver.
So I would go from my mind seeing, to my eyes again seeing,
so I doubt it will be like turning on a light. I would have to teach myself everything
again. Oh but I would make a great student, so please miracle man or woman,
keep those experiments going and don’t give up the fight for sight?
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