Good afternoon Bloggets. I hope this finds you all well? In
the groups I share my blogs in you may find this is the only blog I have posted
in there today I have written other blogs but one in particular is a very deep
poem so dark and felt it wasn’t right to inflict you with that but if you link
Or
You may find what I
have written. One poem in particular is really dark so comes with a warning. It
is about domestic abuse and I can tell you the lady in my poem had a happy
ending. Well, happier than what she was living with.
Just another normal day here in the Blogget household. I
have to go out later for a while so Waggs will be happy. Me? I guess it will be
nice as it’s not a bad day. At least it’s stopped raining. Teen and Hub are at
work. Tomorrow I’m at the big office doing my volunteering. I have a talk in
the morning to give I think this one isn’t too big about twenty five people are
expected. I haven’t as yet turned up to a talk and spoken to one person, like
the organiser, but there is always a first time. Smile.
I’m sitting here on my sofa would love to write in our office
but I feel bad for Waggatail as she gets lonely. Some people say that as long
as dogs are fed and walked they are okay. No, not true. I know of a dog right
now that is missing her owner so badly that she is sleeping outside his bedroom
door. Only thing is, the person is not coming back to her. She is living with a
relative but in the house where the dog owner was living too until they moved
out. She will never see him again and yet she still lays outside his room
pining for him. It’s so sad.
My Wagga came to us and was met by my newly then, retired
guide dog Both Black beauty and Hubs old darling of a dog Long Chops. Waggs
loved BB, and BB was a mother to Waggs. Just as she was some years before to
LC.
Sadly BB died after a year of Wagga being with me. The day
she left the house was really odd. Both Wagga and LC lay at each side of her
like book ends. BB walked out the door never came back. Almost a year later to
the day, LC walked out of the house. She never came back either. Now each time
The Little Fella leaves in the morning to go to work with Hub, Waggatail cries.
And throughout the day, she sits in the porch crying. It’s pitiful. I go and
get her, play with her in the garden, take her to the shop and get her toys out
for her, give her a biscuit and when I’m doing that, she is fine, but as soon as
I stop, she cries and cries again. I talk to her all the time from whatever
room I’m in but she never ever did this until LC died. She didn’t do it when BB
died, so I think she has thought when LC left, this is two dogs’ friends
whatever now, I have lost and will LF come back?
He is a funny one if he has been at work all day like
yesterday he left the house at seven and came back home for almost seven in the
evening. He took himself to bed after he was let out and fed. Wagga went with
him. Now no way she should be tired. All she did yesterday was go to the post
box. She sticks to him like glue.
When he comes out of bed, she follows him like a lost sheep.
She will love it tomorrow as there are a lot of people there
for her to see and she knows LF is there as well as her Daddy who she loves.
Mind you, her Daddy is interviewing so not sure if LF goes
in there with him or stays in a pen. Imagine if LF is in a pen with toys and
Waggs is by my side at a desk? Haha. Let’s hope she won’t see him….
Oh two tinned tuna teen wasn’t a happy bunny today as there
was no tuna for his pasta. So what did he do? Fried some more bacon. He had that
for breakfast and now for lunch too? He said it was for protein. I said he
could do without bacon as he was having steak for dinner tonight. No, he has to
have protein every meal for his muscle definition. Doesn’t matter about his
heart, as long as he looks good. My word.
I thought should I go to the shop and buy him some tuna?
Then thought no, I bought eight cans of it six days ago. No more until next week.
He will not be happy but I can’t afford to keep that going. Tuna isn’t cheap.
He said he would eat Quorn mince. Great, so I will buy him
that next time I’m at the shop. There is turkey for tomorrow for his work
lunch. Quorn is vegetarian so bring it on. I personally don’t like quorn mince
at all, but teen says he likes it so be it. And it is fat free.
He came in last night at nine and at ten went to the gym
after his dinner. Got back about ten
past midnight. He is in again at nine tonight. He is a good worker that is for
sure, but I wouldn’t say he is enjoying his job now especially since his insurance
has gone up to over two hundred pounds per month. As he has to now pay for extra
miles.
I have vases of daffodils. I love them. My favourite flower.
I couldn’t face those flowers for years you know, as when I went blind my first
thought about seeing things or not, was I would never see a beautiful yellow daffodil
again. At spring I used to love picking them and looking at the joyful colour
of the bright yellow. They were perfect flowers with stunning trumpet like
flowers. So simple a yet represented so much. The start of spring which was the
pathway to summer. They were so easy for me to see when I could. Especially
against a dark vase.
For a long time I thought what was the point of them. I
couldn’t see them anymore and of course I still can’t but I have brought myself
round to face the fact I may never ever see them again but I feel them when I’m
putting them in the vase and know what they still represent. I just wish I
could look over to the window and get hourly pleasure from them rather than
three times a week. Once putting them in the vase, second time refilling the
water and third time putting them in the bin, oh there is a subject, bins. Hmm.
Let me tell you about them.
Well we are on the list for our bin men to put the bin where
we leave them. They have not done this since Christmas. I called to let them
know of this and asked for them to fill in the form they sent me as I can’t. The
lady on the phone asked if I could sign the paper, then send the letter back to
her. I said or asked, how do we know where to sign? It went quiet on the other
end. Then she came up with a bright suggestion. “I can send you it in larger
print.” I mean. I told her so many times
I’m blind.
Well our last recycle bin went missing two weeks ago as the
men didn’t put the bins back and we couldn’t find them it was really wild winds
we heard them blowing so went to get them in
after the bin men left and Hub almost got knocked over trying to trace
them on the road. So I phoned the council back up and told them he said we
would have to pay for the bins. Some words were exchanged and he then said our
bins would come by today tomorrow at the latest. Well I called them back today
and guess what? There is no record of my phone call or request.
I got put through to complaints and spoke to a very nice man
who told me he would try to see what was going on. Gave me a reference number
and now I wait in the meanwhile I have to put out my rubbish recycling in plastic
bags. So they will blow over our street I guess but at least we won’t have to
worry about collecting them in? Smile.
So do I have to wait another two weeks to see if I am going
to get a new set of boxes to recycle? Really our kitchen is a mess. Bags everywhere
as I can’t put them outside as the wind will blow them or the rain will spoil
the paper. Also rats? So let’s see what happens tomorrow?
My right eye is killing today. Top right corner. As if a
thick needle is being pushed in there. My left eye feels like a finger is
constantly in there and I still have that dirty view though I have no sight, I see
a blurry mark. Doctors don’t know what it is as for my pains? They say it’s
just RP. Hmm. Dam this eye condition. It’s bad enough being blind but to have
pain as well?
For those with RP did you know in the UK, the first stage of
human trials started in 2007? So nine years where have we got to? Well now we have moved on to Europe and the US
but where are we? Still doing Gene therapy
trials well researchers are working on
injecting a virus into the retina of a harmless virus to carry the specifically
required gene into the retinal cells.
It is hoped that this will lead to the restoration of normal
function or improved function in the cells that receives the replacement gene. So
in short they are trying to turn off the faulty gene but this is proving to be
really challenging. From what I can gather and the medical terminology is so
difficult to understand, but in America and Europe are now working still, after
this finding from the UK studies from way back in 2007. I have read that in the
past five years there have been significant improvements but they are not
saying what? Well, not that I can understand. I wish there was some plain
English somewhere that said look, this is what we have done and are doing and
want to achieve. I heard about cells being removed from the patient’s hands and
placed into the eyes. That was years ago. About nine years ago. I have not heard
anything since. Do you know of anything? If so please let me know and I will
pass it on to our Blogget family. My email is
One step forwards and two backwards I think so far is my opinion.
Please prove me wrong?
Remember if you have RP, There is hope now and there was none
at all when I was a child. In fact as an adult I was told that there was
nothing in my life time and nothing in my sons. Gosh, that was the final straw.
I sat for so many years listening to condescending Doctors with their cold rude
ways and after a Doctor told me there was no chance I would ever see or my Son
if God forbid he developed this disease, he would never see either. I found my
words from the bottom of my heart and calmly told him how I felt about the news
he had just given me. He was either
Japanese or Korean. Not sure but after I gave my two minute talk, it went quiet.
Gosh I thought, heck, I’m going to really get it here? The room was so quiet.
You could hear a pin drop. Had he left the room? No, he eventually spoke.
Asking if I would please leave the room sit outside the door and wait.
Heck, wait for what? Well, his words were meaningful so out I
went I was with my ex-husband at the time. He asked me why I had to wait. I
said I didn’t know. About eight or so minutes went by and he politely called me
in coming to me taking my arm, unlike the first time when he just shouted for
me to come in his direction. Then
watched whilst I struggled finding a chair.
Oh this time he led me to the seat sat down and said in
quivering words how he was so sorry for his behaviour.
It wasn’t about scoring points but letting the machines know
we have a heart. We have feelings we suffer we don’t just deal with the fact we
either are going blind or are blind and there is no chance of a cure. The best
result from that day was he I am sure will never speak to anyone in such a way
again. Doctors now days are really quite nice. Polite and don’t treet you like
criminals. Thank goodness.
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