Some days I hate those two words. I dream of the day when I
don’t read about them. When they never need to feature in my life. but then I remember
that they are after all a part of me now, and hoping to God not, but they may
be forever. It’s the not knowing whether they will be hanging over me for the
rest of my life. Or, will I be free of those words one day and if so, when? It’s
the waiting. I have waited my whole life those words have affected me, in so
many ways. They have taken over my life. ruled my ways and twisted the knife so
deep I’m scarred.
So, if those words were removed from my life, I still will
have effects of them. Haunted, chased and caught, but will someone come along
and free me?
I wonder some days if I will ever stop reading about them
and if I will have time in my life left to enjoy the freedom, time which is
racing to the line, faster than I wish for.
Those words? Retinitis Pigmentosa
RP
Rapid pain. RP, rusty pins. RP, ruining potential. RP, rotten
pungent torturous agonising disease that has attached itself to me from birth.
How to get rid of it? Only a total stranger may have the
answer, but so far, they are not sharing it with those who most days hate those
two words! Retinitis Pigmentosa.
© Fiona Cummings
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