Good afternoon my
dear Bloggets. Yet another different day for me so far. I have been talking
with my wonderful GP. I love her to bits. Her and my dentist would be my
perfect best friends. My dentist is a quiet caring loving Indian lady who
obviously is very very intelligent and my Doctor is so much fun like a little
sister. She is the first Doctor I have never been afraid of. But, today I am
very confused as I wanted to know what the hospital said about my eyes. My
first blood test I had almost three or
four years ago I went for blood tests to be put forward for a huge genetic test
to form a gene pool for research? They lost my details so last year I went for
blood number two. At this point I was thinking my eye Doctor/specialist was
linked and perhaps he found out by doing gene testing, this information, he was
related to, Count Dracula.
Well I have never
been to Romania…
My lovely GP read my letter from the hospital so at least
they wrote to her and they told her I had Autosomal Recessive Retinitis Pigmentosa!
I wanted to know if there are any numbers attached to these words? But there
were no details in the letter. But in the meanwhile, she went onto Google… and
confused me more by talking about leber Congenital Amaurosis! I am sure what
she meant was there is a link as both diseases are from or can be from birth and
both get worse and both are linked to the back of the eye/retina. But LCA, has
totally different symptoms. People with LCA their eyes wobble and sink back
into their sockets. I’m sure there is a much better way medically of describing
this condition, but LCA isn’t what I have. I don’t have any of those symptoms
so I think she was just saying there was a connection.. But I have asked for my
letter and I will go for that tomorrow and read it or try to with my iPhone, which
only reads every few words, so, who knows if that will be of help, if not I shall
think of a different way to have it read. And see what happens next.
I shall let you know. But I also learned that I am due to go
back to that big hospital next year. So, by then I am praying we will have made
a huge step forward in finding treatment for RP and, all eye disease’s to be
honest.
My Waggatail is great getting to the Doctors and back. But once
in, she will walk me to reception but getting her back out? Oh, my, last time
we ended up in the disabled toilet…
OK, so, I could act normal and tell her in front of everyone
who were sitting waiting to be seen, watching us, that she was a good girl for
finding the toilet, pretend to go and come out and find the door out again… but
no, em, there was a lady still in there… thank goodness not actually on the
loo, but just coming out and I found myself walking in her toilet before she
had even dried her hands from washing them… I was mortified. In fact, my morti
has never been so fied. And then Waggs took me to the next door, same wall,
different door, couldn’t be worse right?
Well, not quite.
But it was the lift/elevator!
Oh, seriously, try again Fifi, there can’t be many doors
left? Well the lady from the toilet, left the building. Through the door I needed,
so like a persistent stalker, I followed her I was on a mission. Bless her
cotton socks, I hope I didn’t scare her. hhaha.
Well off to do the doggy doodles now. no, it’s not my
country dancing classes, but cleaning the dog run. Oh, the joys of being a dog
owner…
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