What a mixture this blog is, so are you sitting comfortably?
Well, lets chat, think and answer.
Firstly, a light subject but one that moves us to tears or
makes us laugh with happy funny memories. Something that effects everyone all
the world over and yet it can be so very different. It’s something which we are,
or can be, really passionate about. We can make love to, marry in its
presence, think of our children and remember our school days. Something that takes
part in most funerals and we can feel anger happiness and desire for. Though
this thing, has the same name, it can be so very different, depending on the
persons taste. It can be angry, happy, beautiful, depressing, mournful,
futuristic, ancient, modern or old fashioned and we all experience this at
school, even participate in some way.
What is it?
Music! How does music
make us feel the way it does? May be when we are older, we hear a song that was
our Mums favourite song and we feel sad missing our Mum more as we focus more
on her when this song is heard? A school dance, prom, or just that end of year
disco as it was in my days… We remember the crazy clothes we wore back then we
cringe smile laugh allowed even.
What is it about humans where we like to drive our cars and
perhaps put some music on? Even when we have a baby, we find a musical box to
help with sending them to sleep, or we sing them a lullaby. What else can make
humans react in such a way?
The earliest forms of music were probably drum based percussion
instruments using sticks and rocks. In about 4000 BC the Egyptians had created
harps and flutes, and by 3500, BC lyres reeded clarinets had been invented.
Denmark invented the trumpet. The Hittites invented the guitar.
Classical music is said to be rooted in Grecian innovations. Famed mathematician
Pythagoras dissected music as a science and invented the keystone of modern
music what we know of as the scale. But what made those people do this? Is there
something in our makeup that makes us need to have music? For me personally, I listen
to music every single day/night. Sadly, I don’t play as much as I would like to
and my Husband doesn’t play his piano much either though he did today and it
was lovely to hear. Our Son always records his Dad whenever he plays. BW is so
proud of Hub and rightly so. I remember when my Husband was a very young boy
about eight, being able to play the piano so very well at school. I was so in
love with him in a very innocent way. We were both in the school quire too and
whenever he sang, my heart pounded.
What does music do for you? Is there anyone who doesn’t
enjoy music? You may think if someone can’t hear, they may
not appreciate music, an yet there are some very famous musicians who are deaf.
And next subject. now,
you are facing blindness or may even be blind. Your eye condition is
hereditary, so you can pass your condition/disease onto your children. Now if
you are reading this with perfect vision, stay tuned, as a few of my readers
were born with perfect sight too, but now are facing blindness. If you have any kind of
illness/condition/disease that can be passed on, would you have children?
In my case, my baby had a 50 50% in having my eye disease,
if he didn’t have RP, he would be a carrier for sure. So, his children may have
RP. So, because I gave birth to my baby, I could have been responsible for so
many children being born either blind or at the very least partially sighted or
a carrier.
I so needed a child. One night I was telling my friend how I
had a huge desire to have a baby. I expressed how I had waited so many years in
fear of getting pregnant as I could pass on my eye disease. She told me that by
the time I had a baby, there would probably be treatment for my eye condition.
I guessed she was right. I guessed wrongly. There is no treatment, but thank
God, my baby can see, now by the time he has his children, I doubt there will
be treatment out there, but by the time they are teens, I guess there will be
something. I pray there will, be.
But if my child had been born with poor vision, how would I have
felt now? how would I feel when he was struggling through school? In the playground,
sports? Even in classroom. And then when thinking about what exams to take to
lead to a job, what kind of job that will be suitable for someone with poor
sight. Then learning to drive? Well it wouldn’t be happening, when their
friends go out for a night, how would my Son have been able to do that? Most of
his pals went night clubbing, no way you can do that with a guide dog. Personally,
I would have felt so much guilt because what would stop him from saying to me.
It’s my fault for giving him this disease. And when my Grandchildren are born, I
will have the same worries again. Praying the baby will be born with good
eyesight.
Now if my Son had RP, I of course would still worship him. And
Hub and I would be able to give him a much better start than he or I had in
life, as we will with our Grandchildren. We will be able to teach our Grand
children everything we know to make their lives easier, but still they will
have the effects of their eye condition to cope with. Thankfully Shamrock BW’s
girlfriend, is fine about risking having a child she says she doesn’t mind if
their baby will have RP. She may not, her child might, but not to have a child
because of what we pass on, is such a sad situation, I mean, we pass on genes
all the time that may be considered most unpleasant. Genes that may not be
thought of as a disability, but effect so many people and families in other
ways.
But what if you have a child who has your gene that is so
called faulty in my case my first would be partially sighted with the threat,
they will one day be blind. And then do you think about having a second child?
Taking that risk again? To some, it’s not even a risk. To some it’s like having
a child with red hair rather than blonde or black hair rather than brown. Blue
eyes rather than brown and so on. Your second child is fine, and then you have
a third? Someone I was talking to the other day had a number of children. But they
were very worried they would pass their gene onto another baby, I did wonder
why would they have more than two children if two kids were fine? Isn’t that
like playing Russian Roulette? And if you have three babies who have poor
sight, you have a forth, how is that forth child going to feel throughout life?
guilty themselves? Responsible to watch out for their siblings in the play
ground for example? How are the children going to feel about their brother or sister
who can see if they can’t?
Third and final subject. You have good sight but have been
diagnosed with for example Retinitis Pigmentosa, but again, it could be any
kind of gene in your body that makes your life needing a change. In a very reparable
hospital in for example England, you are invited to take part in a trial, that
they hope will save you from going blind at the very least. Who knows, your
sight may be saved forever, may improve even. But there is a risk that you
could lose all of your vision if the trial goes wrong. You have signed all the
paperwork to make it so you can’t sue your administrators.
A, would you still go for the trial if you were told there
was a risk?
B, how would you feel afterwards if you ended up blind? After
all, it is a trial…
C, if the trial went wrong, how would you feel? Would you
have regrets?
Well someone I was talking to on line last week is about to
do a trial and he has very good sight right now, but this new treatment may
stop him from going blind one day. He’s young still to. So, if you were him,
you can see enough to read, write, walk free without a guide dog or white cane
and you have a good job you enjoy but a job which requires great vision, you
have a very young family, your spouse stays at home with the young babies
whilst you earn for the family. Do you go for this trial? He is and he put it
in such a lovely way, saying by going for this trial, he may make what is inevitable
come faster/earlier than it should but he also could be saved ten twenty years
of worry about going blind. By doing the trial, he is helping others trying to
see if its going to be safe for future treatment. He personally wouldn’t have
any regrets as taking the risk would be worth it if his life would be filled
with forever sight. And if it goes wrong, then the scientists or researchers
can scrap that and move on, making the way better clearer for other trials that
may be more successful. This person James is selfless brave and to me a hero.
I know of people who have gone for trials for other ailments
as well as to save their sight, and it has gone very wrong. So, what would you
do? Over to you.
All yesterday I spent time writing a paper for someone. It
was mentally stimulating to say the least. I did enjoy doing it though as doing
such work wakens a part of my brain that finds itself in permanent slumber most
of the time. I saved it to edit the next day. Unlike my blogs when anything
goes. Haha. Mind you of late I have been having to fix my blogs as my software
is messing things up and removing paragraphs for example. Anyway, as I finished
this paper off late last night, I just had to copy and send it off by email to
the Professor who was equally awaiting the work to arrive in his mailbox.
Stupid me thought I had sent it last night. So, I deleted
the file. Oops…. Em, no, I hadn’t sent it. Panic mode struck in, as I had
started to write something else in the same word file. Hub to the rescue as he
heard the shrieks from the office. He said press control z. I thought that only
saved it if you hadn’t saved the new copy but no, if you press control z a few
times eventually you will get your work back. This only works I think if you
use the software called Jaws, this is what I use to make it so my lap top talks
to me…
Thank goodness my work recovered came back to me and I sent
it fast…
So, something to think about, I shall be back tomorrow with
love.
No comments:
Post a Comment